Advancing Equity in Caregiving for Older LGBTQ+ Adults: Lessons Learned from Interviews with Advocacy Groups, Community-Based Organizations, and Health Plans

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AUTHOR – ATI Advisory

ATI Advisory identifies critical challenges for older LGBTQ+ adults experiencing long-term services and supports (LTSS) needs, including experiences of discrimination, limited social supports and consequent social isolation, and lack of cultural competency by providers of aging services. Interviews with individuals from advocacy groups, community-based organizations, and health plans who serve LGBTQ+ adults inform recommendations to meet these unique needs and challenges. 

Programmatic and policy recommendations highlighted in this brief include strategies for promoting cultural competency among aging services providers and addressing discrimination by homecare providers or by other residents in facility settings. This brief also discusses opportunities for integrated health systems and health plans seeking to advance equitable care and improve data collection processes. These recommendations embrace diverse approaches to enabling supportive environments during aging for older LGBTQ+ adults. 

In addition to this brief, a data spotlight outlines social supports and Medicaid coverage for LGBQ+ individuals.

Recent Work


Health Equity Perspectives from Individuals Experiencing LTSS Needs, and their Caregivers, from Historically Marginalized Communities

ATI Advisory’s qualitative research highlights the experiences of individuals with long-term services and supports (LTSS) needs and their caregivers in requesting, receiving, and providing LTSS. Using a community-based participatory framework in partnership with local organizations, ATI conducted six focus groups interviewing individuals and caregivers from key populations across race, ethnicity, language ability, gender identity, sexual orientation, and disability status about their experiences with LTSS. Discussions generated themes around barriers to accessing LTSS, insights on family and professional caregiving across cultures, financial constraints, the value of social community for individuals and their caregivers, and the impacts of equitable and inequitable LTSS. This work was supported by the Robert Wood Johnson Foundation.
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Pharmaceutical Innovation and the Inflation Reduction Act: 2023 in Review 

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Health Equity in Long-Term Services and Supports: Robert Wood Johnson Foundation Project Results and Findings

Approximately 14 million adults in the United States need long-term services and supports (LTSS) to help with their cognitive and functional needs. How many of these individuals have access to LTSS? What are their experiences like? What are the disparities by race and ethnicity, gender, age, and sexual identity?
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