Caregiving

Work

Opportunities for Improving Access to Palliative Care for Dual Eligible Individuals with Serious Illness

10% of dual eligible individuals report living with a serious illness, according to ATI Advisory’s (ATI) analysis of the 2018-2021 Medicare Current Beneficiary Survey (MCBS) using a narrow definition of serious illness. While this means that 10% of dual eligible individuals can potentially benefit from palliative care, much fewer actually receive such services. This brief highlights opportunities to promote access to palliative care for dual eligible individuals.
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Health Equity Perspectives from Individuals Experiencing LTSS Needs, and their Caregivers, from Historically Marginalized Communities

ATI Advisory’s qualitative research highlights the experiences of individuals with long-term services and supports (LTSS) needs and their caregivers in requesting, receiving, and providing LTSS. Using a community-based participatory framework in partnership with local organizations, ATI conducted six focus groups interviewing individuals and caregivers from key populations across race, ethnicity, language ability, gender identity, sexual orientation, and disability status about their experiences with LTSS. Discussions generated themes around barriers to accessing LTSS, insights on family and professional caregiving across cultures, financial constraints, the value of social community for individuals and their caregivers, and the impacts of equitable and inequitable LTSS. This work was supported by the Robert Wood Johnson Foundation.
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Health Equity in Long-Term Services and Supports: Robert Wood Johnson Foundation Project Results and Findings

Approximately 14 million adults in the United States need long-term services and supports (LTSS) to help with their cognitive and functional needs. How many of these individuals have access to LTSS? What are their experiences like? What are the disparities by race and ethnicity, gender, age, and sexual identity?
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Opportunities to Improve Quality of Life and Health Outcomes Among People Experiencing Incontinence

ATI analyzes the prevalence of incontinence among dual eligible individuals, and highlights services and products that can help individuals manage their incontinence.
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Opportunities to Improve Health Equity in Long Term Services and Supports (LTSS) Through Medicare

Beneficiaries who are Black or Latino/a are more likely than white beneficiaries to report difficulty with activities of daily living (ADLs) and other conditions that can negatively impact their health. Understanding the experiences of individuals reporting difficulty with ADLs across race and ethnicity can help policymakers develop strategies to address inequities. This databook, supported by the Robert Wood Johnson Foundation, conveys research findings on the racial and ethnic disparities among this population across social determinants of health, natural community supports, and health care experiences.
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Guiding the GUIDE Model Toward Stronger Caregiver Supports

ATI Advisory in partnership with the Rosalynn Carter Institute for Caregivers (RCI) sought to explore the evidence and needs of dementia caregivers that might inform a Medicare model test related to dementia care. On July 31, 2023, the Center for Medicare and Medicaid Innovation (CMMI) released the Guiding an Improved Dementia Experience (GUIDE) Model that includes explicit support for caregivers and is set to launch in July 2024.
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